Maddison

Our Pal - Maddison S

  • Born: 02/12/2009
  • Illness: Glioblastoma
  • Status: Current
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Contact Details

C/O 21 Essex Avenue
Hateley Heath
West Bromwich
B71 1HU
United Kingdom


Email Pal


NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Cherrie
  • Interests - Maddie loves frozen, Disney princesses, she loves crafts and making things anything that's messy - lots of glue and glitter
  • Favourite Colour - Pink
  • Able to read? - Yes
  • Able to use hands? - Yes
  • Visually/hearing impaired? - Reduced vision on left side but right side is fine
  • Suffers from any developmental delay? - No

Siblings - aged 3 to 16 wishing to receive post

  • McKenzie (22/08/2005)
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About - Maddison S


Story Written 2017

Maddison was diagnosed with Neurofibromatosis type 1 in 2013 following treatment for a lazy eye, her vision deteriorated rapidly at a routine appointment so further tests were done. It was discovered that Maddie had optic glioma brain tumour, she had 18 months of chemotherapy to shrink the glioma to a manageable size, this was successful and Maddie had been stable for 2 years.

Just before Christmas 2016 Maddie started having seizures, she has never had these before so she went for lots of tests, the results from the MRI on 31st December 2016 originally looked like she had a stroke. They repeated the MRI on 20th January 2017 expecting the signs of stroke to have decreased but the result showed a small tumour the size of a 5p coin. Doctors were concerned as there were no signs of this on the last MRI. It was decided to re-scan again on 31st January to decide what treatment was needed. We got the results on 2nd February, the results showed the tumour had grown to the size of a plum in 11 days. It was decided there and then to operate on 6th February due to the rapid growth of the tumour and do a biopsy. This operation went ahead and Maddie had a craniotomy and 8 long hours of brain surgery to remove as much of the tumour as they could. On the 9th Feb a repeat MRI was done to make sure there was no bleeding on the brain following surgery and check how much tumour was removed.

On the 10th February we got the results from the biopsy, our world fell apart that day, nothing could of prepared us for the news that came next. Maddie was diagnosed to have Glioblastoma Multiforme – a Rapid Growing High Grade Brain tumour normally found in adults over 50 years old. It’s rare for a child to get this type of cancer, we had to make a decision, there is no cure for this type of cancer and prognosis isn’t great. Without treatment the cancer would rapidly spread to the rest of her brain and within 3 months it would end her life. The other option is an intense course of Radio & Chemotherapy everyday for 6 weeks followed by more chemo every 4th week everyday for a week. We do not know if this will work, there’s no guarantee that the tumour won’t grow during the treatment, we are hoping that it will slow the growth down and give us up to 12 months with our precious little girl.

We are at the beginning of the treatment and hope and pray that it buys us some more precious time with our baby girl. Maddison is so full of life and is so happy and smiling all the time, even when she’s poorly she manages a smile. She’s the reason I get out of bed in the morning, paint on a smile and make every day count even when I’m feeling sorry for myself and want to stay in bed under the covers and cry my eyes out. I look at that little face and know I have to carry on and be strong for her and keep making precious memories