James W Chessington

Our Pal - James W

Contact Details

C/O Fox Ward
Level 5, Variety Club Building
Great Ormond Street Hospital for Children NHS Trust
Great Ormond Street

Email Pal

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Rachelle
  • Interests - James loves superheroes, especially Batman & Robin and Flash. He likes motorbikes and monster trucks. His favourite animals are hedgehogs, turtles and owls.
  • Favourite Colour - Red and Blue
  • Able to read? - Yes
  • Able to use hands? - Yes
  • Visually/hearing impaired? - No
  • Suffers from any developmental delay? - No

Siblings - aged 3 to 16 wishing to receive post

  • Emma (14/04/2008)Emma post pals
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      Puppies, lego friends, little mix, gymnastics
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About - James W

Story written 2016

**Please do not send James flowers, latex balloons, food or unsealed sweets**

James was diagnosed with Fanconi anaemia the same time as his sister in 2011. Fanconi anaemia is a life limiting blood disorder. This causes bone marrow failure and a higher chance of head and neck cancers.

Fanconi anaemia has caused James’ bone marrow to fail and he has been transfusion dependent for the last six months. He has an admission date for a bone marrow transplant on 21st November.

Update 17th January 2017

We had a lovely quiet Christmas. The children were amazed at the lovely gifts and cards sent to them, thank you to everyone. The handmade activity book Emma just adored and spent a long time playing with it. Crafts were a great thing being stuck indoors most days in the cold weather especially when immunity is low.
We managed to stay out of hospital over Christmas but James went in on 2nd January with a high fever. We were there just a few days getting blood transfusions and IV antibiotics. Back to Great Ormond Street tomorrow to find out when his transplant will be. Emma is still suffering postherapetic neuralgia from shingles, her skin has almost healed but the sensation of pain and itching is still there. Her hair is growing back well now and she loves putting clips in her hair to show off her new earrings.

Update 1st December 2016

Sadly James’s donor was not able to donate for medical reasons which has meant his transplant has been delayed. We have just heard that two 10/10 matches have been found in the UK and we are waiting to hear if the donors are well and willing to donate.
James has been off school most of October and November due to illness at school. His sister Emma has also had to deal with a bad case of shingles from stopping antiviral medication. She now has postherpetic neuralgia pain but is recovering.
We are looking forward to Christmas together.