Our Pal - Tona-May L

Contact Details

C/O Winscome Care Home
Southwick Road
North Boarhunt
PO17 6JF
United Kingdom

NB: this is a forwarding address, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Eve
  • Interests - Music, Disney, Makeup, Lego, skin care, being outdoors, theatre and the cinema
  • Favourite Colour - Purple
  • Able to read? - Yes
  • Able to use hands? - Yes
  • Visually/hearing impaired? - No
  • Suffers from any developmental delay? - No

Siblings - aged 3 to 16 wishing to receive post

  • Tink 28/04/2004Tink
    • Interests:
      Tink has a developmental delay and is tube fed, please aim post as you would to a child around 9-12 years old. Her interests are Disney, fairies and all things girly
  • Rory 02/03/2015Rory
    • Interests:
      Monster Trucks, Dinosaurs, Hot Wheels and Lego
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About - Tona-May L

**Please do not send food or drink to the whole family**

Tona was diagnosed with Hodgkin’s Lymphoma in October 2019 at age 14. She went through the first 6 months of treatment with relatively few side effects and went into remission. Sadly within 4 months she relapsed and had to have stronger chemo which made her hair fall out for the second time as well as making her much more tired and nauseous. Once no signs of cancer was detected Tona had a stem cell transplant to raise her chances of remaining in remission. Sadly; due to the intensity of chemo given before a stem cell transplant; Tona’s gut shut down and she also suffered a septic episode. She did recover from this and came home. She was still tube fed, having digestive issues and quite weak but enjoyed 5 weeks at home. Tona then caught salmonella from an unknown source and her already sensitive gut just shut down. She was admitted to hospital and also found to have a line infection. Despite antibiotics, within a week Tona developed sepsis and needed retrieving to the most local PICU to be stabilised.

Since this time (May 2021) Tona has not had a night home. After several attempts to re try feeding and several more septic episodes; Tona was able to come back to our local hospital on TPN which is nutrition into her bloodstream. Tona still has frequent episodes of septsis and has very few areas of access left in her body. 

Due to limited chances of being able to get her gut to work again without significant trauma and high risk; Tona has chosen not to pursue this and instead enjoy the time she has left with her family and friends making memories and then returning to the hospital each day for nutrition and medication. 

Update 5th of August 2022

Sadly Tona passed away peacefully in the night. She was surrounded by her family and appeared both free of pain and relaxed.

Please keep sending cheerful post to Rory and Tink, keep it light hearted as you would for any child.