Our Pal - Tayen G


Contact Details

C/O 78A Durleigh Road
Bridgwater
Somerset
TA6 7JE
United Kingdom


Email Pal


NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Kali and Kevin
  • Interests - Mermaids, flamingos, chocolate ( not sweets ) art ( painting, sticky foam shapes ) clothes ( 11-12 ) swimming, audio books, music, baking
  • Favourite Colour - Pink
  • Able to read? - No
  • Able to use hands? - Yes
  • Visually/hearing impaired? - Fully blind, no permeable light
  • Suffers from any developmental delay? - Yes

Siblings - aged 3 to 16 wishing to receive post

  • Matthew (06/05/2005)
    • Interests:
      sailing, cooking, being outdoors, fav colour blue, chocolate ( no sweets ) Action films, interest in puzzles and mechanics, STEM kits. Lego technics. family games. Movie nights. Reading. Harry Potter
  • Connor (02/05/2007)
    • Interests:
      sailing, cooking, being outdoors, fav colours lime green and black, chocolate ( no sweets ) likes Sci Fi, Lego. Reading ( sci fi, mythology, dragons ). family games. Dr Who, Stranger things etc Movie Nights. Harry Potter
  • Lucus (02/05/2007)
    • Interests:
      Sailing, cooking, fav colours orange, red. Chocolate ( no sweets ) STEM kits, Lego tecnics, Movie Nights, being outdoors, stranger things, electronics, art. Harry Potter.
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About - Tayen G


Story written 2017

Tayen was diagnosed at 22 months old after a prolonged seizure at home. She has bilateral optic pathway gliomas (tumours) that have spread through her brain to the back. She started chemo straight away and although it saved her life she lost all her vision just six weeks into treatment. First line chemo lasted 18 months and we then enjoyed 18 months off, however it was plagued with lots of seizure activity and the discovery of hydrocephalus last September. Tayen rapidly went downhill and had bilateral shunts inserted in October. Tayen also had new tumour growth which meant she needed to have more chemo.

Update 20th August 2020

Tayen is currently on a chemo break but she will need more. Life is difficult as Tayen struggles to cope with severe pain and routine changes. It can be very difficult to occupy her. At the moment we’re uncertain if she’ll be returning to school. She currently has lots of appointments due to her varying, complex needs.

Update 9th February 2019

Tayen spent a week in hospital undergoing lots of tests. She has damage from all the chemo she’s had. Things are tough. 

Update 1st November 2018

Tayen is currently finding things really difficult.

Update 19th July 2018

Tayen is now receiving hormone injections. She has Hypothalamic Damage which is also causing a lot of problems

Update 26th February 2018

Tayen is as complicated as ever. She suffered very severe bouts of body pain that require Oramorph and also her seizures aren’t great. Her mobility is also poor now and she spends a lot of time in her wheelchairs buggy when we are out and about.