Our Pal - Tayen G

Contact Details

C/O 78A Durleigh Road
United Kingdom

Email Pal

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Kali and Kevin
  • Interests - Tayen loves bath bombs, Disney princesses, duplo Lego, girly jewellery, mermaids, unicorns and foam sticky shapes and flamingos!
  • Favourite Colour - Pink
  • Able to read? - Learning braille
  • Able to use hands? - Yes
  • Visually/hearing impaired? - Fully blind, no permeable light
  • Suffers from any developmental delay? - Delays due to her visual impairment but is very cognitively able!

Siblings - aged 3 to 16 wishing to receive post

  • Matthew (06/05/2005)
    • Interests:
      sailing, mind puzzles, Lego technics, biking , camping/outdoor stuff, stranger things and is in Griffindor
  • Connor (02/05/2007)
    • Interests:
      avengers, Greek mythology, kindle ebooks, Lego, sailing, stranger things and is in Hufflepuff
  • Lucus (02/05/2007)
    • Interests:
      crafts, sailing, outdoors stuff, Lego, biking, stranger things and is in Ravenclaw
    • Interests:
    • Interests:
    • Interests:
    • Interests:
    • Interests:
    • Interests:
    • Interests:

About - Tayen G

Story written 2017

Tayen was diagnosed at 22 months old after a prolonged seizure at home. She has bilateral optic pathway gliomas (tumours) that have spread through her brain to the back. She started chemo straight away and although it saved her life she lost all her vision just six weeks into treatment. First line chemo lasted 18 months and we then enjoyed 18 months off, however it was plagued with lots of seizure activity and the discovery of hydrocephalus last September. Tayen rapidly went downhill and had bilateral shunts inserted in October. Tayen also had new tumour growth which meant she needed to have more chemo.

Update 9th February 2019

Tayen spent a week in hospital undergoing lots of tests. She has damage from all the chemo she’s had. Things are tough. 

Update 1st November 2018

Tayen is currently finding things really difficult.

Update 19th July 2018

Tayen is now receiving hormone injections. She has Hypothalamic Damage which is also causing a lot of problems

Update 26th February 2018

Tayen is as complicated as ever. She suffered very severe bouts of body pain that require Oramorph and also her seizures aren’t great. Her mobility is also poor now and she spends a lot of time in her wheelchairs buggy when we are out and about.