Our Pal - Jude A


Contact Details

C/O 33 Winter Road
Southsea
Portsmouth
PO4 9BT
United Kingdom


Email Pal


NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Kellie
  • Interests - Football, theatre, dancing, pantomime, playing his iPad, reading, WWE and any sport related subject. Loves receiving Match Attax, loves Minecraft and Lego.
  • Favourite Colour - Red
  • Able to read? - Yes
  • Able to use hands? - Yes
  • Visually/hearing impaired? - No
  • Suffers from any developmental delay? - No

Siblings - aged 3 to 16 wishing to receive post

  • Casey (07/02/2002)
    • Interests:
      Football and golf
  • Oscar (16/10/2007)
    • Interests:
      Football, golf, street dance and Pokemon
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About - Jude A


Story written 2016

Jude was born at 28 weeks’ gestation with severe lung complications. Sadly, shortly after he started to feed he developed problems with feeding and failed to thrive. He fed via jejunostomy for 2 years until he could no longer be maintained nutritionally this way and he started TPN. It soon became clear that fluid volume and electrolytes were an issue and Jude requires huge amounts of both to remain stable. He has to be on TPN 24 hours as he becomes hypo very quickly and cannot grow. Sadly, he has developed portal hypertension and his liver is affected. 9 months ago he listed for transplant after many bouts of line sepsis. He has had an ileostomy formed which has caused many problems as he instersucepts through it requiring a general anaesthetic to reduce. He has had total colectomy which has helped enormously but unfortunately not enough to prevent him from needing a transplant.

Jude is an active little boy who enjoys urban dance and has even won a few competitions! He is very bright and excels at school despite his lack of attendance. He is always happy and takes everything in his stride!

Update 15th November 2017

Jude is currently in hospital at Great Ormond Street with a fungal sepsis and has been very unwell again. He is still unable to attend school so is really missing his friends. Today is day 677 on the transplant waiting list x

Update 15th October 2017

Day 646 on the waiting list. Jude is now on an an IV regime which is quite hard for Jude as he has to sit still! Not an easy task for him. He is cycling IV antibiotics and antifungals now to try and keep him well for transplant. He has been septic so many times this year and it’s just not safe. He is desperate to get to school but this is so complicated on this IV regime that he continues to be home tutored (he desperately misses his friends).

Update 5th June 2017

Jude has been extremely unwell with septic shock. He is still awaiting transplant day 513! He is unable to attend school full time as we currently don’t have enough nursing. He attends once a week so is desperately missing his friends.

Update 15th February 2017

Jude remains on the transplant list. He has been home from hospital for three weeks after a long admission which kept him in over Christmas.
Sadly Jude is unable to attend school at the moment as he has no nurse to take him and education have yet to put a tutor in place so he is quite bored!