Our Pal - Connor S

Contact Details

C/O 12 Bishops Close
Isle of Wight
PO36 9EW
United Kingdom

Email Pal

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Antonia
  • Interests - Lego, drawing/art, Harry Potter, animals, Marvel Hero’s and magic. Manga and anime
  • Favourite Colour - Red
  • Able to read? - Yes, but he is dyslexic.
  • Able to use hands? - Yes
  • Visually/hearing impaired? - Connor wears glasses and has an extreme sensitivity to light.
  • Suffers from any developmental delay? - Connor has a learning disability and his current educational level is around primary school age.

Siblings - aged 3 to 16 wishing to receive post

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About - Connor S

**Please do not send any food containing gluten, wheat, dairy or sesame seeds**

Story written 2016

Connor was born five and a half weeks early after a difficult pregnancy. Shortly after this he was admitted to the paediatric intensive care unit as he stopped breathing. He remained in the PICU for the majority of his first year, whilst they tried to find out why he was having constant episodes of apnoea or complete failure to breathe. They eventually diagnosed Connor with Congenital Central Hypoventilation Syndrome, (CCHS). It was also discovered through a DNA screen that Connor has an extra chromosome, which has caused an array of issues for him. 

Over the years Connor has also been diagnosed with a learning disability, dyslexia, autistic tendencies, an anxiety disorder, migraines and Tourette’s Syndrome (Connor has facial and body tics and twitches and makes squeaking noises when he gets scared or excited). Connor also suffers from sensory processing difficulties. Connor has constant problems with extreme fatigue and widespread pain, which unfortunately mean that his life is very restricted. He spends the majority of his time in bed. 

Connor does not get many opportunities to go to activities or on outings, as he needs several days to recover afterwards and frequently gets ill whilst he is out. We currently do not know if this is due to Connor being severely affected by his Klinefelter Syndrome or whether it is, as some doctors feel, down to either M.E. and/or Fibromyalgia. 

Connor has had a very difficult year which has left him upset and depressed. He has always been as positive and happy as possible, given his conditions, so it has been hard for us as his family, to see him so down. 

Update 21st June 2021

As always, a huge thank you to everyone who has sent Connor post, he really appreciates every bit he receives. He tries to reply to people who have given a return address, when he is up to it, but unfortunately he has had a lot of longer periods of being at his worst in the last 6 months, which has meant he’s not had the ability to send much.

Postpals has been a tremendous help to Connor over the years and he would also like me to thank Vikki, Ali and all the other volunteers for everything they do, as well as everyone who takes the time to write to him.

Update 30th July 2020

A huge thank you to everyone who has sent Connor post. His depression got so bad that he was put on to antidepressants in February and has had the dose raised twice since. These have seemed to help a little but the post that’s sent really does put a smile on his face.

As with a lot of others, Connor hasn’t left the house for 16 weeks now, unfortunately  for the majority of that time he has had to stay in his bed, as his fatigue and pain have been so bad.

Whilst every bit of post is greatly appreciated, Connor wanted to say an extra thank you to Bev, for always thinking of him, to Susan from America, for all the post she sends, to Gwendoline and everyone involved in the special book and to all the ladies of the Postpals Sewing Bee, for the absolutely phenomenal Harry Potter quilt you made for him.

Update 2nd October 2019

Connor would like to thank everyone who has sent him post, it is very appreciated. Extra special thanks to Bev, Penny and Susan for being beyond amazing!

Connor has been suffering very badly with pain and fatigue during the summer.Over an eight week period, he only left his bed a few times for hospital appointments and as he wasn’t really up to going out, these appointments just depleted his energy levels even more. Being in so much pain is only adding to his low mood. He also recently discovered that some of his bowel issues and chronic stomach pain is due to him being extremely intolerant of wheat, gluten, dairy and sesame seeds, so he is having to get used to a new diet.

Connor really enjoys getting his post and he does try to reply to people when he is feeling up to it, so thank you again to everyone who sends him post.