Our Pal - Connor S


Contact Details

C/O 12 Bishops Close
Sandown
Isle of Wight
PO36 9EW
United Kingdom


Email Pal


NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Antonia
  • Interests - Lego, drawing/art, Harry Potter, animals, Marvel Hero’s and magic. Manga and anime
  • Favourite Colour - Red
  • Able to read? - Yes, but he is dyslexic.
  • Able to use hands? - Yes
  • Visually/hearing impaired? - Connor wears glasses and has an extreme sensitivity to light.
  • Suffers from any developmental delay? - Connor has a learning disability and his current educational level is around primary school age.

Siblings - aged 3 to 16 wishing to receive post

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About - Connor S


**Please do not send any food containing gluten, wheat, dairy or sesame seeds**

Story written 2016

Connor was born five and a half weeks early after a difficult pregnancy. Shortly after this he was admitted to the paediatric intensive care unit as he stopped breathing. He remained in the PICU for the majority of his first year, whilst they tried to find out why he was having constant episodes of apnoea or complete failure to breathe. They eventually diagnosed Connor with Congenital Central Hypoventilation Syndrome, (CCHS). It was also discovered through a DNA screen that Connor has an extra chromosome, which has caused an array of issues for him. 

Over the years Connor has also been diagnosed with a learning disability, dyslexia, autistic tendencies, an anxiety disorder, migraines and Tourette’s Syndrome (Connor has facial and body tics and twitches and makes squeaking noises when he gets scared or excited). Connor also suffers from sensory processing difficulties. Connor has constant problems with extreme fatigue and widespread pain, which unfortunately mean that his life is very restricted. He spends the majority of his time in bed. 

Connor does not get many opportunities to go to activities or on outings, as he needs several days to recover afterwards and frequently gets ill whilst he is out. We currently do not know if this is due to Connor being severely affected by his Klinefelter Syndrome or whether it is, as some doctors feel, down to either M.E. and/or Fibromyalgia. 

Connor has had a very difficult year which has left him upset and depressed. He has always been as positive and happy as possible, given his conditions, so it has been hard for us as his family, to see him so down. 

Update 2nd October 2019

Connor would like to thank everyone who has sent him post, it is very appreciated. Extra special thanks to Bev, Penny and Susan for being beyond amazing!

Connor has been suffering very badly with pain and fatigue during the summer.Over an eight week period, he only left his bed a few times for hospital appointments and as he wasn’t really up to going out, these appointments just depleted his energy levels even more. Being in so much pain is only adding to his low mood. He also recently discovered that some of his bowel issues and chronic stomach pain is due to him being extremely intolerant of wheat, gluten, dairy and sesame seeds, so he is having to get used to a new diet.

Connor really enjoys getting his post and he does try to reply to people when he is feeling up to it, so thank you again to everyone who sends him post.