Finley J

25 February 2018

Story Written 2018

Finley was diagnosed on 1st March 2016, aged 6 years, with anaplastic large cell lymphoma (ALCL) a rare type of non-Hodgkin lymphoma (NHL). Like all lymphomas, it’s a cancer of the lymphatic system, which is part of the body’s immune system.
A programme was immediately put into place and Finley started intense chemotherapy which lasted for six months. Finley responded really well to treatment and he rang the End of Treatment Bell on 11th August 2016 and was in remission for 15 months with bi-monthly visits back to the hospital for check ups.
On 11th October 2017 it was sadly confirmed that Finley had relapsed and the cancer was back. This time his treatment programme will continue for two years with chemotherapy treatment once a week. You can follow Finley’s Journey here, we will be posting regular updates of his treatments and what he is getting up to as a normal everyday 7 year old boy!

Update 4th March 2019

Finley has been doing well lately. He hasn’t had any unexpected hospital stays since November but is still going to hospital once a week for his weekly chemotherapy. He is now on week 70 of weekly Vinblastine. Finley has grown a bit over the last few months and has put on a little weight which is brilliant, but this meant his chemo needed to increase too. The first few weeks were tough for him, the increase made him more tired and it really effected the muscle in his legs and feet again, which was very painful for him to walk and be active. Also his liver did not like the increase, his ALT went up so we had to keep a closer eye on that and increase Finley’s water intake to 2 litres a day which is really helping and his ALT has gone down.

Finley is going to school most days at the moment. He isn’t doing full days but he goes and does the best he can which is fantastic. He has also recently started back at swimming lessons once a week to build up the muscles in his legs, he absolutely loves it. He can’t wait to start riding his bike again too.

Thank you so much to everyone that has sent post. Finley really enjoys getting it and it puts a massive smile on his face, which puts a smile on our face. It is very much appreciated by us all.

Update 22nd July 2018

Since Finley had his line removed and changed to a port he hasn’t had any infections, which is great. Finley has had a few hospital stays due to having tonsillitis twice in one month and needed IV antibiotics to get rid of it.

Finley’s treatment is going well, but one of the many side effects from the chemotherapy he is on, effects his nerves and muscles in his hands, feet and legs. This is very painful for Finley and he finds it difficult to walk some days. His chemo dose was reduced for a few weeks to try and give him a break, which did help and was a much needed break for him after 6 months of continuous weekly chemo. He is now back up to full dose chemo and is having physiotherapy to help strengthen his muscles.

Finley has been popping in and out of school when he feels up to it, which he has really enjoyed seeing his friends.

Thank you to everyone that has sent post, it really brightens up Finley’s day and puts a big smile on his face. It is all very much appreciated.

Update 6th March 2018

Finley has been staying in hospital more than expected the last few months, as he kept spiking temperatures and was unwell with infections in his central line. His consultants made the decision early February to have surgery and remove his central line and give him a 2 week break before putting in a new one. Finley now has a new line,but this time he has gone for the Port. Since this has been done Finley has been feeling a lot better and has a bit more energy.
Finley is still not back to school,but hoping he will be able to go back half days in the next few weeks.
Finley is currently having home schooling when he doesn’t have to be at hospital,which he is enjoying.

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