Lewis B

21 September 2016

Story written 2016

Lewis was diagnosed with Acute Lymphoblastic Leukaemia on the 13th May 2014. He is halfway through his treatment but suffers with a lot of pain and discomfort due to the chemo. This won’t get better until he’s off chemo and hopefully it will improve afterwards, although there’s no guarantee.

We spent the first 18/20 months in hospital every week for up to 3/4 days.¬†This has slowed down but he’s on the highest pain medication and it doesn’t stop his pain.¬†Lewis would love to have contact with anyone willing to send him cards.

Update 3rd March 2017

Lewis has had a number of tests to find out why he’s in so much pain daily. He was sent for an emergency MRI and this showed bone problems we don’t know yet what they are as have to wait to see a bone specialist.

If Lewis tries to do anything it will result in more pain so he’s wheelchair bound until this is sorted out.

This has been very tough for Lewis he’s also been trying to go into school where they all fight over who’s going to push him but he’s been incredibly tired so hasn’t managed much.

Update 4th January 2017

Lewis is currently in hospital. He’s loved getting post and gifts and opens them with his brother, Bobby. Everyone who’s sent cards and gifts has really cheered him up. He thanks everyone, it means so much to him. Lewis hasn’t been having a great time lately he’s been in and out of hospital, he’s been in hospital more than home this last month. Lewis has had a number of problems, his latest admission meant we were admitted before new year and spent new year in hospital as he had breathing difficulties, severe joint pains and was unable to move, mouth sores and very painful sore throat. Lewis still is recovering at home and struggling.
Lewis has been referred to physio once again and we’re hoping to get the help he needs.

Update 13th November 2016

Lewis has been unwell he’s got a strange red marks all over his face shoulders and neck. He’s been at home a lot. He has also been very excited to finally be a post pal. He comes down every day checking the post and loves all his mail. I’m going to get him writing set to reply this week to the Ones that leave addresses. Lewis’s health isn’t great, he’s not managing as well as we all hoped at this stage, he’s on daily morphine and struggling with his pain.

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