Story written 2016
Kennedy was diagnosed with acute lymphoblastic leukaemia (ALL) on November 25th 2015. She had been poorly for a couple of months with different infection such as tonsillitis and a urinary infection. During this time she had also been complaining about her knee hurting and her back hurting. We had a number of visits to the GP and hospital. Eventually on the 25th she came out in a rash that covered her legs. I did the glass test and immediately rushed her to hospital. The hospital were very quick to do bloods and that’s when they said the most likely outcome was leukaemia. Great Ormond Street Hospital confirmed this the next morning.
Kennedy now has two years of chemotherapy to get through. She is currently in remission, which means they cannot find the disease under a microscope or it’s a very tiny amount. However that doesn’t mean it isn’t there which is why the treatment is for two years. She is at low risk of relapsing, so fingers crossed she just carries on fighting like she has been.
Update 4th January 2017
Hi everyone. So it’s been a while since we have updated … so sorry!
We firstly again would like to say a huge thank you to everyone that sends post! It really does cheer us all up.
So, Kennedy has been doing really well. She started nursery in September. It was hard at first and I had to keep leaving her screaming and crying (I did too when i got out the gates, lol) but now she loves it there. She has had to have quite a bit of time off, sadly, due to being poorly through November and December. She kept getting coughs and colds and then at the beginning or December was admitted to the local hospital for 4 nights with tonsillitis and an ear infection. Since then she has been fine (touch wood).
She still struggles with having her port accessed. We thought we had it slightly under control but then she takes 10 steps back 🙁 We have come to the conclusion that it will more than likely be like this until the end of treatment and we just need to deal with it. The good thing is that once it is finished she settles very quickly and is happy to carry on playing etc which means she isn’t too traumatised.
She had a fantastic Christmas and thoroughly enjoyed herself. She did get very tired after, although that didn’t stop her playing with all her new toys.
She even managed to eat some of her Nanny’s Christmas dinner (she still pretty much lives on cold food like sandwiches and cereal).
Thank you to all that sent Christmas cards, parcels, reindeer letters, Mrs claus and Santa letters and Elf parcels. They got so many and we are so, so, so grateful. They loved opening every single one.
She had her chemo upped a little in October as her bloods were staying on the high side. They are still remaining a little on the higher side (not too much) but probably enough to up them again.
She has recently been complaining about pain in her legs and arms. So I’m just keeping an eye on her.
Other than that she is a tough little cookie and continues to smile, laugh and give thumbs up 🙂
Happy new year to you all. We hope it is a happier and healthier year for you all.
Update 24th July 2016
First of all we would like to say a massive thank you to every single one of you who have sent Kennedy and her siblings post. It really has helped them and they look forward to and appreciate every single piece
Kennedy had a bit of a rough time during the intense part of treatment. This included staying in hospital for a week with a horrible viral throat infection and mucotisis.
Since finishing the intense stage she has been doing really well. We have had some trouble with her port that got resolved but other than that things are looking good.
She is looking and feeling great and has been full of energy. However if we go out for the day to a park etc she does get tired easy and can last for a few days if she does to much.
Took her about a week to recover from the post pals party (which was amazing!! Thank you so much)
She still struggles with the stairs but doesn’t let it stop her and she keeps going.
She still struggles a bit with being accessed but is getting a lot better now. She doesn’t kick or hit out anymore. She just lays there and cries. Hopefully this will get better over time too.
Kennedy can not wait to see the film Finding Dory!