Our Pal Emma T
Easy remember link: http://www.postpals.co.uk/pals/Emma+T+
Quick Link: Emma T 's Story
| Born | 09/01/2007 |
|---|---|
| Illness | Wilms' Tumour |
| Status | Current |
| Home Page |
Address: - READ SAFETY
Gillingham
Kent
ME7 2WG
United Kingdom
NB: this is a forwarding address for the Pal, we do NOT disclose home addresses
Email - READ SAFETY
Other Information
- Emma T 's Parents/Guardians
- Robert and Marie
- Emma T 's Siblings
- Justin (adult) Jessica 07/12/98 Likes books, sports, music and skateboarding. Amber 09/01/2007 Likes arts and crafts, games, going to the park, books, Barbie.
- Emma T 's Interests
- Likes arts and crafts, music, games, Barbie.
- Emma T 's Favourite Colour
- Pink and blue
- Is Emma T able to read?
- No
- Is Emma T able to use hands?
- Yes
- Is Emma T visually/hearing impaired?
- No
- Does Emma T suffer from any developmental delay?
- No
Emma T 's Story
Story written 2011
Emma was diagnosed with a Wilm’s tumour on 24th June 2011 after a lump appeared on her tummy. Her chemotherapy started on 27th June.
The thing Emma misses most is playing with her friends at nursery. She doesn’t have the energy to play physical games and prefers to do art activities and play board games.
Until Emma has surgery, scheduled for 23rd of August, we don’t know how much chemotherapy she will need but we have been told that it will be about 9 months worth. She is being very brave about having it.
Emma’s prognosis is good. She wants the ‘nasty lump’ gone. Emma has always been a determined little girl.
Update 9th February 2012
Emma had a fantastic birthday. Both she and Amber loved opening all the gifts and cards they received from everyone.
Emma has been quite well recently and seems to be coping well with everything. We now have an end in sight as she doesn’t have much more chemo left to go now.
She is still going to school in the mornings and is now learning to read, which she loves. She did have to take a week off earlier in the month as she had developed a cough but thankfully nothing came of it. It was slightly worrying as Amber had tonsillitis, which we thought Emma might catch, but she didn’t. We were worried for a little while as Emma's blood levels dropped and there was some question over her needing a blood transfusion but thankfully her body dealt with it and her levels are all good again.
Emma has also been attending parties, both at school and with family. She loved being able to see everyone and have fun with people she hasn’t seen for a while.
Update 19th January 2012
December has been a very busy month for Emma and all the family. Luckily we didn’t have any hospital stays but we did have to have a dose of antibiotics for yet another chest infection. Chemotherapy is still going and she had the last dose of the long chemo in December so now she only has little ones.
This month Emma chose to take part in a Santa Fun Run in aid of the local hospice so all the family joined her. The children’s ward at the local hospital had their annual Christmas party and Emma and Amber had great fun seeing the magician and Santa and having their faces painted there. They were also lucky enough to see two pantomimes, one that the hospital organised and one in school. Emma loved being able to see them. Because Emma has been able to attend school most mornings she was also able to participate in the school nativity and was given the option of what character to be. She chose to play a shepherd.
Christmas morning in our house was great; the children were so excited opening every single present and card. So by bedtime they were thoroughly exhausted but so content.
Just after Christmas, Emma had her last big chemo and we were so pleased to discover that over the course of the holiday period Emma had put on almost 1kg which is fantastic.
She is also now taking part in The Beads Of Courage programme and we are also looking at getting Emma into school for 2 full days a week as well as mornings.
Thank you for all the Elf parcels as it made Christmas even more magical. We want to thank you for doing a wonderful thing for all the children.
Update 7th November 2011
Emma has now finished her radiotherapy course, but whilst having it she got a few infections so had to spend a few weeks in hospital. Hopefully her body is now starting to recover from the side effects and she is getting better. She is now on antibiotics for a chest infection.
Emma has managed to get back into school for a few mornings and has thoroughly enjoyed being back with all her friends.
Thank you to all of the people who have taken the times to send post, she still loves getting post, as do all three girls.
Update 3rd October 2011
Emma's operation went well. It lasted 5 and a half hours and afterwards she was taken down to PICU, where she had to stay for a few days after developing a temperature. The tumour was larger than they thought as it was hidden up behind her stomach. The surgeons think that it is possible the tumour may have leaked and have decided to give her Radiotherapy as well as Chemotherapy. After 3 days she was moved back to a normal ward and was home after 7 days, feeling well and trying to get back to normal. The surgery left her tired for a few weeks but the scar is healing very well and she is now getting back to her bouncy self.
Since her operation, Emma has recovered well. She is just about to start radiotherapy but thankfully only has to have 8 sessions. She does have to have 6 months of Chemo as well.
She is looking forward to getting back to school and being with her friends and we are hoping that she can get back in for half days next week then start again full time once she is more settled into her Chemo routine.
I’d like to say a big thank you for all the post received.
Update 4th September 2011
Emma will be going into St George’s hospital in London on the 12th September ready for her surgery on the 13th. She should only be in for about a week, all being well. Emma is keeping very brave and can’t wait for the ‘operation to get rid of nasty lump’ as this is what she is calling it.
I just want to say thank you to everyone at Post Pals for all the smiles they bring to Emma and her sister's faces.
Update 18th August 2011
Emma’s surgery that was scheduled for the 23rd of August has now been cancelled. We have been told that the chemo is working well and has shrunk the tumour but they want to shrink it some more to make surgery easier for Emma. Also, the lesions on the lungs are barely visible on the CT scan, so they restarted her on chemo on 17th August and did a chest x-ray as they want to see if the lesions on the lungs are visible. If they are, then Emma will need radiotherapy.
At the moment we do not know the outcome of the x-ray, but Emma has another 3 weeks of chemo and on the third one they will be doing another CT scan. Fingers crossed everything has worked as they hope so that they can rearrange surgery for the middle to the end of September. We are now back and forward to The Royal Marsden and our local hospital for the rest of the chemo.
I would like to thank everyone at Post Pals for all the letters, cards, and gifts that Emma and her two sisters have received. It always brings a smile to their faces.


















