Our Pal Ruby J
Easy remember link: http://www.postpals.co.uk/pals/Ruby+J
Quick Link: Ruby J's Story
| Born | 06/04/2007 |
|---|---|
| Illness | Intestinal pseudoobstruction |
| Status | Current |
| Home Page | http://www.caringbridge.org/visit/rubyskyejohnson |
Address: - READ SAFETY
Leasingham
Sleaford
Lincolnshire
NG34 8NJ
United Kingdom
NB: this is a forwarding address for the Pal, we do NOT disclose home addresses
Email - READ SAFETY
Other Information
- Ruby J's Parents/Guardians
- Lucy
- Ruby J's Siblings
- Ruby J's Interests
- Ruby loves splashing in puddles, going to the park, all animals especially elephants, monkeys, pigs, giraffes and mice. She loves Peppa Pig and Postman Pat (especially Jess his cat), reading, especially touch and feel books. Her favourite thing to do in the whole world is arts & crafts activities like sticking, painting, colouring, making decorations!
- Ruby J's Favourite Colour
- Red
- Is Ruby J able to read?
- No
- Is Ruby J able to use hands?
- Yes
- Is Ruby J visually/hearing impaired?
- No
- Does Ruby J suffer from any developmental delay?
- No
Ruby J's Story
Story written 2009 Ruby is a true fighter! She has battled with her condition since birth, which in total means she has spent half of her life so far in hospital. When she was born they discovered she had a extremely huge bladder which is very rare. She also has problems passing her first bowel movement. After weeks of tests she was sent home. They didn’t know what was wrong but they hoped for the best. However 3 months later we were admitted to hospital due to vomiting and dehydration. It was the first time we learnt about 'pseudo obstructions' of the bowel which happen randomly and can be life threatening. For the entire year we would be home for 2 weeks, then in hospital for 2 weeks. She has struggled with her condition for a long time now. Spending so much time in hospital can be very difficult. There is nothing that would cheer Ruby up more than getting letters from friends wishing her well. She loves opening post. She loves all things girly and pink! She is a true star and always smiles. She is our beautiful angel. She has been through so much. This year has been none stop tests and procedures. So much so that she is starting to get fed up and feel a bit down. All her amazing doctors at Great Ormond Street have decided that she is going to have some surgery to make her life better. The second week in December she is due to have major surgery on her bladder, stomach and bowels. They are hoping this will make life easier for Ruby. She would really appreciate some smiles through the post! WOW, you have made these last 2 months so much easier for us! Thank you all so much for everything you have sent. I am sorry if i haven’t sent you a thank you note, it is because we have had a very rough month. I really do try to thank everyone, but i know that some of the best presents and letters have not been responded to. This is because i kept thinking i will write a proper letter, but never got chance to because i was waiting for things to get better and they haven’t! THANK YOU! Hello everyone! Well what a difference Post Pals has made to little Ruby's life. To say 'thank you' seems insufficient! She has received the most wonderful cards, letters, postcards and presents from the kindest people! We will try to thank everyone individually who have left their address details, but to everyone else, I can't thank you enough! You really brightened her month. Especially when she was in hospital on Christmas Day! When we got home on Boxing Day she had a huge pile of presents and cards waiting for her, it made her so happy! Ruby's surgery in December was cancelled at the last minute. We were really disappointed, because we just don't know how much longer she can go on like this. Since then she has had 3 admissions to 3 different hospitals, 3 ng tubes, 6 cannula's, and 4 Pseudo Obstructions. The longer Ruby waits for the surgery the worse her condition will be in later life. We got the date - it's the 15th January. So we will be in London from the 14th for 2 weeks and if anyone wants to cheer Ruby up please send a little hello to her at the hospital! Ruby J Rainforest Ward Great Ormond Street Hospital Great Ormond Street London WC1N 3JH The surgery and recovery will be hard. Ruby is having an Ileostomy and a GTube (Gastrostomy). So when she wakes up she will have an extra bag and tube. I know she will cope fine; she is the most amazing, strong little girl! She will be very sore, so any nice letters to cheer her up would be wonderful!Update 14th February 2010
Update 3rd January 2010
Update 11th December 2009
Ruby is a true fighter! She has battled with her condition since birth, which in total means she has spent half of her life so far in hospital.
When she was born they discovered she had a extremely huge bladder which is very rare. She also has problems passing her first bowel movement. After weeks of tests she was sent home. They didn’t know what was wrong but they hoped for the best. However 3 months later we were admitted to hospital due to vomiting and dehydration. It was the first time we learnt about 'pseudo obstructions' of the bowel which happen randomly and can be life threatening. For the entire year we would be home for 2 weeks, then in hospital for 2 weeks.
She has struggled with her condition for a long time now. Spending so much time in hospital can be very difficult. There is nothing that would cheer Ruby up more than getting letters from friends wishing her well. She loves opening post. She loves all things girly and pink!
She is a true star and always smiles. She is our beautiful angel. She has been through so much.
This year has been none stop tests and procedures. So much so that she is starting to get fed up and feel a bit down. All her amazing doctors at Great Ormond Street have decided that she is going to have some surgery to make her life better. The second week in December she is due to have major surgery on her bladder, stomach and bowels. They are hoping this will make life easier for Ruby.
She would really appreciate some smiles through the post!
Update 14th February 2010
WOW, you have made these last 2 months so much easier for us! Thank you all so much for everything you have sent. I am sorry if i haven’t sent you a thank you note, it is because we have had a very rough month. I really do try to thank everyone, but i know that some of the best presents and letters have not been responded to. This is because i kept thinking i will write a proper letter, but never got chance to because i was waiting for things to get better and they haven’t! THANK YOU!
Update 3rd January 2010
Hello everyone! Well what a difference Post Pals has made to little Ruby's life. To say 'thank you' seems insufficient! She has received the most wonderful cards, letters, postcards and presents from the kindest people! We will try to thank everyone individually who have left their address details, but to everyone else, I can't thank you enough! You really brightened her month. Especially when she was in hospital on Christmas Day! When we got home on Boxing Day she had a huge pile of presents and cards waiting for her, it made her so happy!
Ruby's surgery in December was cancelled at the last minute. We were really disappointed, because we just don't know how much longer she can go on like this. Since then she has had 3 admissions to 3 different hospitals, 3 ng tubes, 6 cannula's, and 4 Pseudo Obstructions. The longer Ruby waits for the surgery the worse her condition will be in later life.
We got the date - it's the 15th January. So we will be in London from the 14th for 2 weeks and if anyone wants to cheer Ruby up please send a little hello to her at the hospital!
Ruby J
Rainforest Ward
Great Ormond Street Hospital
Great Ormond Street
London
WC1N 3JH
The surgery and recovery will be hard. Ruby is having an Ileostomy and a GTube (Gastrostomy). So when she wakes up she will have an extra bag and tube. I know she will cope fine; she is the most amazing, strong little girl! She will be very sore, so any nice letters to cheer her up would be wonderful!
Update 11th December 2009
Ruby is a true fighter! She has battled with her condition since birth, which in total means she has spent half of her life so far in hospital.
When she was born they discovered she had a extremely huge bladder which is very rare. She also has problems passing her first bowel movement. After weeks of tests she was sent home. They didn’t know what was wrong but they hoped for the best. However 3 months later we were admitted to hospital due to vomiting and dehydration. It was the first time we learnt about 'pseudo obstructions' of the bowel which happen randomly and can be life threatening. For the entire year we would be home for 2 weeks, then in hospital for 2 weeks.
She has struggled with her condition for a long time now. Spending so much time in hospital can be very difficult. There is nothing that would cheer Ruby up more than getting letters from friends wishing her well. She loves opening post. She loves all things girly and pink!
She is a true star and always smiles. She is our beautiful angel. She has been through so much.
This year has been none stop tests and procedures. So much so that she is starting to get fed up and feel a bit down. All her amazing doctors at Great Ormond Street have decided that she is going to have some surgery to make her life better. The second week in December she is due to have major surgery on her bladder, stomach and bowels. They are hoping this will make life easier for Ruby.
She would really appreciate some smiles through the post!
Update 3rd January 2010
Hello everyone! Well what a difference Post Pals has made to little Ruby's life. To say 'thank you' seems insufficient! She has received the most wonderful cards, letters, postcards and presents from the kindest people! We will try to thank everyone individually who have left their address details, but to everyone else, I can't thank you enough! You really brightened her month. Especially when she was in hospital on Christmas Day! When we got home on Boxing Day she had a huge pile of presents and cards waiting for her, it made her so happy!
Ruby's surgery in December was cancelled at the last minute. We were really disappointed, because we just don't know how much longer she can go on like this. Since then she has had 3 admissions to 3 different hospitals, 3 ng tubes, 6 cannula's, and 4 Pseudo Obstructions. The longer Ruby waits for the surgery the worse her condition will be in later life.
We got the date - it's the 15th January. So we will be in London from the 14th for 2 weeks and if anyone wants to cheer Ruby up please send a little hello to her at the hospital!
Ruby J
Rainforest Ward
Great Ormond Street Hospital
Great Ormond Street
London
WC1N 3JH
The surgery and recovery will be hard. Ruby is having an Ileostomy and a GTube (Gastrostomy). So when she wakes up she will have an extra bag and tube. I know she will cope fine; she is the most amazing, strong little girl! She will be very sore, so any nice letters to cheer her up would be wonderful!
Update 11th December 2009
Ruby is a true fighter! She has battled with her condition since birth, which in total means she has spent half of her life so far in hospital.
When she was born they discovered she had a extremely huge bladder which is very rare. She also has problems passing her first bowel movement. After weeks of tests she was sent home. They didn’t know what was wrong but they hoped for the best. However 3 months later we were admitted to hospital due to vomiting and dehydration. It was the first time we learnt about 'pseudo obstructions' of the bowel which happen randomly and can be life threatening. For the entire year we would be home for 2 weeks, then in hospital for 2 weeks.
She has struggled with her condition for a long time now. Spending so much time in hospital can be very difficult. There is nothing that would cheer Ruby up more than getting letters from friends wishing her well. She loves opening post. She loves all things girly and pink!
She is a true star and always smiles. She is our beautiful angel. She has been through so much.
This year has been none stop tests and procedures. So much so that she is starting to get fed up and feel a bit down. All her amazing doctors at Great Ormond Street have decided that she is going to have some surgery to make her life better. The second week in December she is due to have major surgery on her bladder, stomach and bowels. They are hoping this will make life easier for Ruby.
She would really appreciate some smiles through the post!
Update 3rd January 2010
Hello everyone! Well what a difference Post Pals has made to little Ruby's life. To say 'thank you' seems insufficient! She has received the most wonderful cards, letters, postcards and presents from the kindest people! We will try to thank everyone individually who have left their address details, but to everyone else, I can't thank you enough! You really brightened her month. Especially when she was in hospital on Christmas Day! When we got home on Boxing Day she had a huge pile of presents and cards waiting for her, it made her so happy!
Ruby's surgery in December was cancelled at the last minute. We were really disappointed, because we just don't know how much longer she can go on like this. Since then she has had 3 admissions to 3 different hospitals, 3 ng tubes, 6 cannula's, and 4 Pseudo Obstructions. The longer Ruby waits for the surgery the worse her condition will be in later life.
We got the date - it's the 15th January. So we will be in London from the 14th for 2 weeks and if anyone wants to cheer Ruby up please send a little hello to her at the hospital!
Ruby J
Rainforest Ward
Great Ormond Street Hospital
Great Ormond Street
London
WC1N 3JH
The surgery and recovery will be hard. Ruby is having an Ileostomy and a GTube (Gastrostomy). So when she wakes up she will have an extra bag and tube. I know she will cope fine; she is the most amazing, strong little girl! She will be very sore, so any nice letters to cheer her up would be wonderful!
Update 11th December 2009


















