C/O 71 Robertsbridge Road
Carshalton
Surrey
SM5 1AH
United Kingdom

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

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Macaulay F's Parents/Guardians

Andy

Macaulay F's Siblings

Grant (27/09/1993) likes Arsenal FC, reading true stories, cinema, bike riding, PS2. Jessica (21/01/2003) likes playing with her dolls, playing in the garden and the park, watching videos and dvds. Joshua (08/08/2005) likes Tigger, Thomas the Tank Engine, Roly Mo from the Fimbles, loves buses, playing with his toys, playing in the garden and the park and scooting around on his truck!

Macaulay F's Interests

Doctor Who and Power Rangers DVD's, PS2/consoles, Cinema, Swimming, Horse Riding, WWE wrestling (he likes Bobby Lashley and has named his stomach bag after him!)

Macaulay F's Favourite Colour

Red

Is Macaulay F able to read?

No

Is Macaulay F able to use hands?

Yes

Is Macaulay F visually/hearing impaired?

Yes

Does Macaulay F suffer from any developmental delay?

Yes

Story written 2006

Macaulay was born on the 20th of March 1995. He had pneumonia and was in special care for 15 days. He was then allowed home for 2 weeks and wasn’t feeding properly or gaining weight. He was then transferred back to hospital where they detected a heart murmur so he had an operation to repair that at 5 ½ weeks old at the Royal Brompton in London. He was then transferred to our local hospital to recover.

Then they found he had more problems as he kept projectile vomiting, so they did a Nissans operation to stop him from being sick. From there on his health went down hill, I battled for 7 years to say there was still something wrong with him as his stomach blew up like a balloon. They eventually transferred him to Great Ormond Street Hospital where it took them 1 year of extensive testing to come up with the diagnosis of his problem - Neuropathic Pseudo Obstruction.

The only treatment for this is several different medicines; they have formed an ileostomy and gastrostomy. He is on Peptamin fed via his gastrostomy 3 bolus and 1 pump feed.

Update 14th May 2008

Macaulay is ok. He is having a few up and down days with his health, but seems to be coping. We received the results from his long test he had at GOSH and they weren’t good, they can’t re-connect his bowel at the moment as his bowel still isn’t well enough. Plus, they said if they did it now it would disturb his puberty etc so best to leave it until the bowel is 80-100% better. So, that was a bit disheartening but we are just plodding along as usual.

I hope everyone else is ok and thank you to all that have kindly sent Mac things.

Update 6th April 2008

Macaulay had a good birthday and he had lots of cards and presents. He’s happy now I’m at home after my stay in hospital. He has to stay in hospital on the 15th until the 17th for a test we have been waiting for, so fingers crossed it all goes well.

Thank you to all those who sent Mac birthday cards and letters and thank you to Julie for the present.

Update 29th February 2008

Macaulay has had an up and down month but is doing ok. He is happy as he has just been given respite in a place where he wants to go. He is still waiting to go for his test in GOSH which is getting very frustrating. He had a good half term though and enjoyed the rest.

Thank you for all his post this month.

Update 30th January 2008

Macaulay has not been feeling too well this month but is doing ok. He has to go to GOSH on Friday to have an operation on his stoma and he is hoping to go swimming as soon as he can go back in the water. He is still waiting to have his test to see what they are going to do with his bowel which is making him very frustrated.

Update 2nd January 2008

Macaulay has had a lovely Christmas. He got lots of presents from Father Christmas; he got a new playstation 2 and lots of games to play on it.

Health wise Macaulay has been well. Tomorrow he’s due to have a blood test and on Monday he’s having a small operation to correct the position of his Grommet as they have got lodged in his ear canal. They are hoping his hearing will improve after the operation but if not he may have to have his hearing aids back, as at his last hearing test he did quite badly bless him.

A big thank you to everyone who sent post and a special thank you to Julie for sending Macaulay the lovely gift.

Update 4th December 2007

Macaulay has had an up and down month and has had this horrible cold with a nasty cough. He’s still waiting for the test at Great Ormond Street and this is becoming frustrating as we don’t know what’s happening. He has been to have his hearing checked which is very bad and he’s got to have a small op done to correct his grommets and possibly have his hearing aids back.

On Monday the 10^th Macaulay is going to the Crystal Palace annual Christmas Party which he is extremely excited about.

Thank you to everyone that has sent post this month.

Update 30th October 2007

Macaulay has had a up and down month. He went in to Great Ormond Street Hospital to have the test he has been waiting for, but unfortunately it didn’t go to plan as they had to insert a catheter from his nose down to his tummy and they couldn’t get the tube where they wanted it. They had to abandon the test so we are now waiting for them to redo it a different way, which we hope is soon. Macaulay is still finding it very difficult to cope with his stoma and having to be fed four hourly.

Thank you to everyone who has sent Macaulay something this month.

Update 30th September 2007

Well it’s been a busy time for us all, as we have just moved into a nice house at last!! Macaulay is very happy to be in a house now and he loves the garden as we never had before.

He has had his ups and downs with his illness and he will be going into GOSH on Friday to have a test so they can decide what they are going to do with him long term.

Macaulay has settled back into school ok and is working hard again. Macaulay is enjoying football again on Friday’s plus swimming.

Update 30th August 2007

Macaulay has had a good summer holiday with lots going on. He stayed in his respite center for 5 days and had fun there. He has had his ups and downs with his illness, but is getting through it. We are moving very soon to our new house which we are all looking forward to.

Update 4th August 2007

Macaulay has been in hospital this month to have his feeding tube put back in as when i went to change it i couldn’t put the new one in. He has had an up and down month with his illness but is staying strong. He is going to his respite centre for 5 days which he is looking forward to. He is still waiting to go to GOSH for his test but at the moment the machine has broken.

We are moving soon as the flat we are in has been leaking so we have now got a house which is being all done up for us. We should be in there in a month and it will be great for us all.

Thanks to everyone who sends me cards and letters.

Update 1st July 2007

Macaulay has had his up and down days this month. He has been to his respite centre this weekend which he loves. He has his sports day coming up which should be great if the weather is good. He has got a carer now who has him once a week for 3 hrs who does lots of fun things with him.

Thank to everyone who sent me post and thanks to Julie for my WWE kit.

Update 4th June 2007

Macaulay has had an up and down month again. He has been very busy too - he went to see the new spiderman film which he loved. He is still waiting to go into hospital to have his test. This weekend he has been at my mother in laws and he has great fun there. He played in the garden and went out for a meal - he really loved it and had lots of fun.

Thank you to everyone for my cards and letters as I enjoy receiving them.

Update 1st May 2007

Macaulay has had an up and down month with his illness. We are still waiting to go in for his test. His baby brother was in hospital with pneumonia but is better now. He went to his respite centre for the weekend and had fun. Thank you all for sending Macaulay cards/letters, he enjoys receiving them.

Update 31st March 2007

Macaulay has had an up and down month with his health. He has had a few obstructions which give him an awful lot of pain and discomfort but he seems to be well again now. Macaulay is still waiting for a test to be done at Great Ormond Street. They did have a date but there was no bed so we are still waiting.

He had his 12th birthday this month and got lots of lovely cards and presents. He was also in a competition with his school this month and they came 4th which was great!  

Thank you to everyone for all my lovely cards and gifts. Thank you also to Julie for the notes and messages, as they make him smile.

Update 2nd March 2007

Macaulay has had an up and down month and we are still waiting to have his test to see what they are going to do with him.

He has been getting very angry lately as on a sad note, his great granddad past away on Monday, which is a great loss to the family as he was a much loved member.

Macaulay is still not copping very well with his stoma bag, it has come off every day this week and made his skin very sore. Thank you to all that send cards to Macaulay, it makes him happy receiving them.

Update 8th February 2007

Macaulay has had some ups and downs with his health and he has started counseling at GOSH to help him cope with his illness which is great.

He is still waiting to go in GOSH to have a test so they can make up their minds in what they are going to do with him and we are also trying to get a shower fitted to make it easier for him.

Thank you for all his post.

Update 30th December 2006

Macaulay has not been feeling too well lately but is feeling a bit better now. He has a busy new year with hospital appointments and its crunch time to see if his bowel is better so they can rejoin it, but his doctor does not hold out hope that they can.

Thank you to everyone who sent me a card and to Sue for the lovely Christmas presents.

Update 30th November 2006

Macaulay has not been feeling very well lately because of his pseudo. He has a busy december with appointments and on the 7th he has to go in to hospital to have his feeding tube changed because he has not been getting on with it. On the 19th he has two appointments at GOSH.