C/O One Moultan Close
Chaddlewood
Plympton
Plymouth
Devon
P17 2XD
United Kingdom

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Email Pal

Jon Paul O's Parents/Guardians

Jill and Mark

Jon Paul O's Siblings

Jon Paul O's Interests

Loves fire engines and fire services, Harry Potter, plays football for local disabled football team, and Play Stations

Jon Paul O's Favourite Colour

Red and Blue

Is Jon Paul O able to read?

Yes

Is Jon Paul O able to use hands?

Yes

Is Jon Paul O visually/hearing impaired?

No

Does Jon Paul O suffer from any developmental delay?

No

Other information

Is dependant on Oxygen

Story written 2006

Jon Paul was diagnosed with Cystic Fibrosis at 13 days old. He was born with perforated bowls, distended tummy; he died twice but was brought back to us. He wasn't expected to live until he was 3, now he is 15. He also has Cerebral Palsy.

He is fire services mad, loves anything to do with fire engines and has been to New York, San Francisco and Washington to visit their fire stations. He has also been to London and is now a member of the London fire service. He has 209 fire engine helmets from around the world, badges from around the world, T-shirts and lots more. He is also football mad and supports Sheffield Wednesday and plays for the Plymouth Argyle disabled football team. 

Jon Paul has to go into hospital for 2 weeks every 3 months for treatment (IV antibiotics) and has a Gastrostomy tube in his tummy, Portacath in chest and splint on his leg for his Cerebral Palsy. Yet through all this he remains positive and likes to help other people, he has a positive outlook on life and will not let his disease get him down.

Update 6th February 2008

Jon Paul will be out of hospital on the 11th February after being in hospital for 3 weeks and he is looking forward to coming home again.

He has scared us as he was so very ill. He lost 6lb in weight and has been on 50% pure oxygen for 2 and a half weeks. His lung function has only been at 39% and doctors were really worried about him.

A letter was sent to Great Ormond street to see about a transplant, but Jon Paul being Jon Paul, has pulled himself through again and has shown us all that he will not let his illness beat him.

Update 31st January 2008

Thank you to everyone who has sent me cards, they are brilliant and I love them all. I am still quite poorly and I have to stay in hospital for another couple of weeks but the doctor said it is for my own good.

Update 15th January 2008

I have to keep smiling although I do not feel like it at the moment as I am not very well. My cough and lungs are bad so I have to go into hospital 1 month early. The doctors are not very pleased with my lung condition and are worried about how ill I am.

Update 16th August 2007

Jon Paul has been for his yearly check today. He has lost 8lbs in 3 weeks, plus his chest is very weak and he is finding it hard to breathe, so he is in hospital, he will be in over his birthday which he is sad about. 

He would like to say thank you to all that have sent him birthday cards, but he will not open them until his birthday.

Update 12th August 2007

Hi everyone, just to say that Jon Paul is going to be 16 at the end of August and it looks like he will be spending his birthday in hospital, as he is very poorly yet again.

Apart from that, he looked very chic at his sisters wedding in July where he was the chief usher and he had some girls chat him up, but he was not interested in them, typical boy.

He has had some fire badges from Alabama from some fireman over there so that is now 148 fire badges from around the world, but he is still collecting more. Thank you to all the people who are sending him letters too, he enjoys reading them.

Update 4th June 2007

Jon Paul now has the job of being a referee for the football team he plays with. He has his own referee outfit, whistle and plays by the book. Although he is still fire engine mad he is finding it hard to hear from any firemen.

Today he has been admitted to hospital as he is very poorly. He is expected to be in for at least 3 weeks. Apart from that, he is still fighting and says that the C/F will not get the better of him. Keep up the good work and blessings to all of you.

Update 5th May 2007

Just to let you know that I did not go to Lourdes in France as my doctor said I needed oxygen and it was too late to tell the air line we were flying with. I am feeling well at the moment and I am now looking forward to July when my big sister gets married, as I am going to be chief usher. First I have to do a 2 week course of antibiotics in hospital to get me in good condition.

I’d like to say thank you to all the people who have sent me cards and gifts.

Update 5th April 2007

I would like to wish everybody, especially all those nice people who send me cards and get well wishes, a very happy easter. I am fine at the moment, although have just spent 2 weeks in hospital, but am on oxygen at home now. Next week, fingers crossed, I am going to Lourdes in France with the Royal Navy group and I know I will have a good time.

Update 22nd March 2007

Jon Paul is in hospital and is on 50% oxygen, day and night. His lung function is only 84% at the moment and he is feeling very down about having to go in so early. He has only been out 8 weeks and was not due to go in again until the middle of April, so he is feeling upset. It’s best to get it over and finished though or he will not be able to go to Lourdes for Easter with the H C P T group.

Update 8th March 2007

My consultant wants me to go into hospital 2 weeks early, even though I am not supposed to go in until the end of April, as my chest is very crackly and my breathing is not too good.

Update 8th February 2007

Jon Paul would like to say thank you to everyone who has sent him cards and gifts.