Our Pal Ethan B
Easy remember link: http://www.postpals.co.uk/pals/Ethan+B
Quick Link: Ethan B's Story
| Born | 25/06/2001 |
|---|---|
| Illness | Cystic fibrosis (CF) |
| Status | Current |
| Home Page |
Address: - READ SAFETY
Harleston
Norfolk
IP209BU
United Kingdom
NB: this is a forwarding address for the Pal, we do NOT disclose home addresses
Email - READ SAFETY
Other Information
- Ethan B's Parents/Guardians
- Suzanne
- Ethan B's Siblings
- Ethan B's Interests
- Karate, Swimming, Beaver Scouts, Reading and having fun
- Ethan B's Favourite Colour
- Blue
- Is Ethan B able to read?
- Yes
- Is Ethan B able to use hands?
- Yes
- Is Ethan B visually/hearing impaired?
- No
- Does Ethan B suffer from any developmental delay?
- No
Ethan B's Story
Story written 2008
Ethan was diagnosed with Cystic Fibrosis just before his first birthday after recurrent chest infections. Ethan was a very 'floppy' baby who at times would only lie around, was not interested in toys or his surroundings and did not have the energy to crawl. Ethan's first admission into hospital was on Christmas Eve when he was six months old, where it was thought he had Bronchitis. From then on it was fortunate that he was referred to the local paediatrician, who then made the diagnosis after several sweat tests came back inconclusive. Once diagnosis was made and he started treatment his life improved considerably.
Ethan has since had a further three hospital admissions for IV treatment and a bronchoscopy. Ethan's daily routine consists of 40 tablets, nebulisers, inhalers and physio twice a day.
Ethan attends main stream school and despite having to have medication during the day he enjoys his school life to the full.
Update 7th April 2008
Ethan attended his annual review in March and we had some good news and bad. The good is that Ethan has grown and put on weight. The bad is that unless his cough goes he will be going into hospital for 2 weeks. Ethan is now on a nebuliser which he hates and needs to have physio 3 times a day along with his other activities. Ethan also has crackles back on the base of his right lung and they took months to go last time.
On a positive note, Ethan is now a purple tag in karate, even though he broke his little toe during a sparing match!
Many thanks to Helen F, Ethan loves the socks so much he wears them every night! To Debi, the hat is lovely, thanks! Julie, thank you for your cards and the tongue-twister which had us all in fits of laughter!
