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Our Pal - Skylah-Mae V

  • Born: 26/05/2013
  • Illness:
  • Status: Current
  • Home Page:

Contact Details

C/O 22 Smeaton Close
Blakelands
Milton Keynes
Buckinghamshire
MK14 5HR
United Kingdom


Email Pal


NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Gemma
  • Interests - Loves arts and crafts, peppa pig and all things Disney. Her favourite princess is Tangled, she enjoys playing with her babies and her toy kitchen.
  • Favourite Colour - Pink & Purple
  • Able to read? - Not yet
  • Able to use hands? - Yes
  • Visually/hearing impaired? - Yes - No vision in right eye but left eye is perfect.
  • Suffers from any developmental delay? - No

Siblings - aged 3 to 16 wishing to receive post

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About - Skylah-Mae V


Story Written 2017

Skylah was a healthy, happy baby born on 26th May 2013. In September 2013, Skylah was diagnosed at 4 months old with bilateral retinoblastoma (eye cancer in both eyes). She underwent six rounds of chemotherapy and we got the all clear in January 2014. When we went for her next check up we found out she had relapsed in one eye and she would need more chemotherapy, this time it was called intra arterial chemo. Whilst they were doing the procedure they came across a blockage, so she was sent for an MRI. When the results came back we were told they had discovered a brain tumour in her pineal gland, she had a seven hour operation and had intensive chemotherapy which ended October 2014.
We were over the moon that it had finished and for about a year and a bit we enjoyed her being clear of a brain tumour! She still had regular checks on her eyes and needed regular treatment to keep her right eye stable but all in all everything was looking up for us!
In January 2016 we took Skylah to A&E as she was walking a bit odd and then when they did an MRI they found that she was covered in tumours from the bottom of her spine all the way up to her brain! We were completely devastated!
We got told there was nothing they could do for her apart from palliative radiotherapy which ended in March 2016. We took her home to make as many memories as possible, but she has been a complete superstar and is amazing all her consultants. Skylah is still with us over a year later and we are so thankful for every day we have with Skylah.
Unfortunately on the 23rd August 2017 we had to make the decision to have Skylah’s eye removed and she is having the operation this Wednesday 30th August 2017.