Our Pal - River W


Contact Details

C/O 5 Woodbank Road
Littleborough
Rochdale
Lancs
OL15 0DR
United Kingdom


Email Pal


NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Jeni and Chris
  • Interests - Disney Characters i.e. Mickey Mouse Club House, Toy Story. Dinosaurs, Mr Tumble. Loves animals, funfair rides, All things Sensory, Thomas the Tank, trains, Pirates(he goes aha when he sees pirate things)
  • Favourite Colour - No favourite
  • Able to read? - No
  • Able to use hands? - Yes
  • Visually/hearing impaired? - No
  • Suffers from any developmental delay? - Yes. Please aim post around the age of 3 and also don't send small objects River could put in his mouth

Siblings - aged 3 to 16 wishing to receive post

  • Roxi-Blue 04/10/2007
    • Interests:
      Disney Pins. Stitch the Disney Character. Belle from Beauty and the Beast. LOL Dolls. Goats. Ariana Grande. Unicorns.
  • Ocean 29/05/2015
    • Interests:
      Mickey Mouse, Donald Duck, ALL Disney Characters! ALL Animals. Cars. Paw Patrol. Stickers. Everything! Lol.
    • Interests:
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About - River W


Please do not send small items River can put in his mouth or latex balloons (he doesn’t have an allergy but they are dangerous to him).

Our son River is now 8 years old and suffers from a life-threatening condition. He has an extremely rare and complex mutation on his CNK SR2 gene. There is no cure!  River will need 24/7 lifelong care and he will never really have friends he can play with or share his life with because he will never have his own independence.

River is non-verbal, but can communicate. He sadly suffers from the life threatening type of seizures, status epileptics, which are a medical emergency. He’s attended resus too many times – first when he was only 5 weeks old. I (his Mum) had to perform CPR on River when he was 2 years old and he is rushed to ressus by ambulance frequently. He also has central sleep apnoea, hypermobility syndrome, sensory processing disorder, autism, ADHD, severe learning disabilities etc.

All we can do is hope and pray our River makes it into adulthood, as we have nearly lost him so many times. We want to make the most of every day we have with him, making special memories and for him to enjoy his life to the best he can. When River is able to he loves going to theme parks, going on fast rollercoasters, watching live shows, farms, zoos, all kinds of days out, he has a real love for life and having fun!

Despite all his challenges, he is such a delightful and sunny boy, so caring and determined to fight everything life has thrown at him, and he is loved by everyone who meets him. River is such an inspiration.

Update 1st July 2018

River has missed a lot of school recently due to him having a lot of seizures needing to use his seizure rescue medication for status Epilepticus seizures. When he has made it into school he’s been getting shaking and too tired so we have been bringing him home early. But he did get to enjoy his school sports day, he was so chuffed to see us all in his school, he found it very funny and was showing us what he could do as he loved making us smile and praise him! Due to all the seizures,he has had so much trouble sleeping, getting headaches and sickness, and just generally knocking him out of sorts, so as a family we have been taking one day at a time. And when Rivers has been up to it getting him out in the lovely sunshine.
He has been receiving lovely post from his amazing Post pals, along with his big sister and little brother who have had so much fun opening cards, letters, pictures and playing with gifts. We thank you all so much, it means so much to our family, bringing so many smiles when it’s needed. Thank you.