Our Pal - Evia S


Contact Details

C/O 69 Wittsend Site
Arksey
Doncaster

DN5 0TP
United Kingdom


Email Pal


NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Other Information

  • Parents/Guardians - Stacey and Mark
  • Interests - Ben and Holly, Peppa Pig, Books, sensory items (Touch and feel)
  • Favourite Colour - None
  • Able to read? - No
  • Able to use hands? - Yes
  • Visually/hearing impaired? - Completely blind with no vison at all
  • Suffers from any developmental delay? - No

Siblings - aged 3 to 16 wishing to receive post

  • Eliott 23/12/2014
    • Interests:
      Paw Patrol and Cars
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About - Evia S


Story written 2018

Before Evia’s second birthday we noticed she had started to lose her sight. We were back and forth to the hospital where Evia had numerous tests and scans. Evia was transferred to another hospital where they fitted her with a port and started to administer IV chemo. After 18 months of chemo which made Evia sick and lose her hair, she then had 9 months off. They removed her port but at her next scan they had to put the port back in and re-started chemo, which she now has weekly.

Evia had a second round of chemo which lasted for a year. She finished this at the end of January. Evia now has to have regular scans and at the moment she still has her port. Evia has NF1 which caused her to go blind but she refuses to let this stop her.

Update 18th September 2018

Evia would like to thank everyone that has sent her letters and gifts, she loves feeling them all and listening to us read them to her. We will keep them all in her craft book she can now remember what some of the letters and cards say and who they are from.

She recently had a MRI scan which was good news, they said her tumour is stable but they are keeping her port in at the minute just in case as they took it out to early last time and she needed it put back in.

We have since learned that the tumour has damaged the nerve which tells her when she is full and this explains her obsession with food. She has just got a trike so we are hoping this will help with the exercise.

She recently had her ears tested they are concerned with her left ear so may need grommets or a hearing aid in the future.